The road towards recovery

So it has been 1 week now since Madison's surgery. She has been doing well but her recovery has been slower then expected and we have had some bumps along the way. They have keep her pretty sedated this week, she has been experiencing a lot of pain from the device on her face and discomfort from the ventilator. We have also seen a noticeable difference in her chin and tongue placement. They started the distraction process on Friday and will continue to turn the device until the 14th. She also was supposed to get the ventilator out yesterday but with the pain she is having and the amount of pain medicine they are giving her they are taking that day by day. She has had a fever a few times so they are also trying to ensure she doesn't have any infections. So we continue to take it day by day and hope we can hold her again soon.
We also have amazing news, Kennedy was finally able to see her little sister face to face. She was so sweet and behaved so well as she just sat there whispering to Maddy and holding her hand. Amber continues to be the rock of our family as she sits by Madison bedside watching over her as I have now gone back to work and only get to see her before or after work. Continue to pray for her and hope for a speedy recovery, and thanks for all your words of support they help us get through this.