skip to main |
skip to sidebar
Highs & Lows
So again we have been spending the last few days living at the NICU hanging on each feeding and hoping for the best. We have seen Madison get up to as much as 65cc over the last couple of day which is fantastic and is where she needs to be consistently for 2 full days before she can come home. We had found a new way of positioning her that has shown us awesome results and Amber and I thought we were seeing the light at the end of the tunnel... Until we went up there today and saw her only get 20-15-23cc, which was hard. You start to get your hopes up and begin to start planning for the next stage and then we have a set back and it kin
da rocks you. It was hard, and di
scouraging but we continue to forge ahead. It is also challenging when speaking with the Dr.'s & nurses because they never speak in time lines and are always saying "we will continue to watch her and monitor her progression " never giving you a week, day or month to move towards. Amber continues to be amazing throughout this and she has so much love to give to all of us. Kennedy has been such a good girl these last 2 weeks and has done so well with us being gone everyday, and she greets us each day with hugs & kisses as we walk through the door. We love Maddy so much and hope that you all who are reading this will continue to pray for her. Thanks again for all those who continue to support us!
da rocks you. It was hard, and di
scouraging but we continue to forge ahead. It is also challenging when speaking with the Dr.'s & nurses because they never speak in time lines and are always saying "we will continue to watch her and monitor her progression " never giving you a week, day or month to move towards. Amber continues to be amazing throughout this and she has so much love to give to all of us. Kennedy has been such a good girl these last 2 weeks and has done so well with us being gone everyday, and she greets us each day with hugs & kisses as we walk through the door. We love Maddy so much and hope that you all who are reading this will continue to pray for her. Thanks again for all those who continue to support us!
maybe you need to show those nurses how to hold her like you do to get better results! =) i want to meet this DARLING maddy...she needs to come home! tell her that her favorite aunt jeana loves her! xoxo
ReplyDeleteour prayers are still with you guys! please let us know if there's ANYTHING we can help with (cooking, cleaning, babysitting, etc...). we love you!
ReplyDelete